Research study [Assistive Technology to combat forgetfulness]
We would like to invite you to be part of this research study, and would like to ask for your consent. You should only agree to take part if you want to, it is entirely up to you. If you choose not to give consent to take part there won’t be any disadvantages for you and you will hear no more about it. Please read the following information carefully before you decide to give consent; this will tell you why the research is being done and what participants will be asked to do if they take part. Please ask if there is anything that is not clear or if you would like more information.
You are free to withdraw your consent at any time and without giving a reason.
You have been asked to take part in a research project run in conjunction with Queen Mary University of London: Christine Farion is a research student at Queen Mary University of London. Her research is studying forgetfulness, which can be a cause for concern when it begins affecting our daily lives. Forgetfulness is associated with feelings of embarrassment and shame and yet there is little attention given to forgetfulness in a healthy population. Forgetfulness is a lived experience and something that happens in our day to day. Therefore we propose the “message bag”, which will be carried throughout regular daily activities, with an aim to alleviate the cognitive load, in an effort to eliminate forgetfulness.
Confidentiality, anonymity, and data storage: All video-recordings will be destroyed within 7 years, unless material acquired is acknowledged to have value and potential for subsequent analysis to enable further publication of findings. Survey questionnaires will be stored for 7 years, and everything will be anonymised. The data used in papers or for further research will not have any identities associated with it, it is only your responses that we are interested.
All identities’ will be anonymised in any subsequent publications.
During the analysis period, only the principal investigator, supervisors and the supporting institutions will have access to the data. All non-digital data gathered as a part of the study (consent forms, data obtained through informal conversation and written observation notes) will be stored in secure location in the University. All digital data (video-recordings and photographs) will be stored in encrypted files on password protected digital format on a computer located in the University and one of the investigators’ laptops.
Digital and non-digital data resulting from the study will only be used as:
• A part of this research study will appear in presentations and publications relating to this research.
(Queen Mary University of London, Research Ethics Application No. QMREC1159)